His Middle Name
  • Home
  • Our Story
  • Photos
  • FAQs
  • Blog
  • Contact

A Preemie Parent's Summer Bucket List

5/21/2014

1 Comment

 
Picture
You can feel it in the air, can’t you? There’s that certain something; an excitement for all that is refreshing and bright. Yep, the summer season is almost here! I can’t believe it's come so fast, but this weekend is Memorial Day weekend so no matter what your calendars or to-do lists say, it’s the official start of summer in my book! As I stretch and exhale at the thought of all the summer fun ahead, I can’t help but think of how my son makes any cherished celebration brand new. Just the thought of enjoying a vacation with my little family brings a smile to my face, and I know we’re ready to climb out of the little cocoon we have built around ourselves this past spring (don’t know what I’m talking about? Read here). But what about all those who may not be quite ready for such an active season?

What about the families who are just bringing their precious baby home after weeks or even months spent in the NICU?

What about the preemie parents who are hyper vigilant because their child suffers from allergies or asthma?

What about the preemies with sensory issues who respond differently to the world around them?

What about the preemies who just had a life-changing surgery and are facing recovery during the coming months?


When there’s a social expectation to everything summer – picnics, barbeques, family reunions, vacations, beach trips, community festivals, etc. -  how do you know when enough is, well, ENOUGH? I don’t believe caring for the needs of your premature child should have to be so hard during the summer, and that’s why I’ve created a small bucket list just for us preemie parents! Okay, maybe it’s not so much a bucket list as some guidelines to help you along the way, but hey, I just love the idea of keeping things simple and achievable .... and that in essence is a bucket list! So here’s some encouragement and goals to keeping things fun, safe and manageable for you and your preemie this summer.


  • Go at your own pace! There’s no need to have to "keep up with the Joneses" when it comes to summer fun. If you can’t commit or just don’t think the activity is safe for your little one, then don’t feel guilty about having to pass on the invitation. The art of saying no is subtle – politely decline the offer or suggest another activity you feel more comfortable with. This also holds true if you have a child who is older or has a disability. Just because your child’s best friend is attending summer camp or their cousin is taking gymnastics classes doesn’t mean your child has to. Find your own stride for summer – your preemie or NICU grad’s needs (and talents even!) may be different in relation to their peers, and that’s okay.​
  • Dehydration. I contacted my pediatrician for this one! He said in general, it's not a good idea to give your baby water until they're about 6 months old. Until then, they will get all the hydration their little bodies need from breast milk or formula, even in hot summer weather. The only exception to this rule is if you have an infant that is ill and losing fluids - but that instruction should only come from your pediatrician. Oh, and just say no to juice, tea or soda!!! If you have a toddler (between the ages of one and three years old) they should be getting all their liquids from a combination of milk, water and fresh juices. You can also leave water accessible to them in a sippy cup where they can get at it and drink when they feel thirsty. A good way of monitoring how much they are getting is to check their urine. If it's clear or light yellow they are getting enough!
PictureSutton's first summer!
  • Avoid crowds. This ties in to #1 on the bucket list and is especially important if you have a premature child that is newly home. Your baby is not only premature, but their exposure to everything around them is premature as well. You can protect them best by keeping the environment around them healthy and limiting your outings to high-traffic areas. Preemie lungs are incredibly sensitive and just because summer isn’t considered cold and flu season doesn't mean they can't come in contact with other types of viruses or bacterial infections. Sutton was only nine months (six months adjusted) when he experienced his first summer. Believe me, as much as we wanted to travel, visit museums and attend large street festivals, we just felt more comfortable being around a few family members at a time. Please keep in mind that the Synagis shot is also available to all premature children to help aid their developing immune system.

  • Summer doesn’t have to mean swimming. I know, I know – but it doesn’t! I learned this the hard way last summer when my son was two years old. He went through a phase where he was terrified of the water all of a sudden. He went from being a water loving baby to absolutely terrified of the bath and pool. Knowing this was a phase and not wanting to push him, we did other activities that weren’t focused around the pool. We went to our local park that has a “splash pad” and allowed him to go at his own pace. If he wanted to splash in the water or spray himself he could, if he didn’t then there was a playground with climbing stations and swings to entertain him. Within a few weeks he was back in the water (with floaties and constant supervision) and by summer’s end he was much more at ease. We’ll be following up with swimming lessons this summer to hopefully build on the confidence he gained last summer. If your little one is afraid of the water or has sensory issues that make pool time overwhelming, let them play with the hose and help you garden, run or crawl through the sprinkler, play with a water table or just wade their feet or sit on the steps of the pool and cool off. Believe me, summer does not have to be synonymous with swimming - just be creative!
PictureSutton's first Disney trip!
  • Traveling with little ones is tough – every parent knows that. But if your preemie came home on oxygen, is on medication, has a feeding tube or has to do daily breathing treatments, then vacationing can be that much more overwhelming. Making a “things to pack” list with everything you may need before you hit the road can be incredibly helpful because you can just check the list off as you pack! If you’re visiting a theme park this summer and your child has food allergies, diabetes or is on a special diet, be prepared to pack food items and cool packs for long days out and about. And my number one paranoid preemie momma tip? Know the local hospitals that are closest to you when visiting a new area. Although many popular theme parks have first aid stations, they do not have on-site hospitals for major emergencies. Just prepare yourself as best you can and enjoy your vacay!

From the bottom of my heart, I hope each and every one of you have a safe, happy and leisurely summer! Keep in mind that His Middle Name will be starting "Mommy on Mondays" back up this June (the first Monday of every month) and will continue with our Weekly Inspiration Wednesdays throughout the entire summer! Stop by, share your story, post a picture of your precious preemie or just garner some encouragement from the His Middle Name Facebook page here. Wherever summer takes you - enjoy your paradise!
1 Comment

Parents of Preemies Day 2014!

5/1/2014

0 Comments

 
Picture
Welcome to all the His Middle Name fans old and new! Can you believe this tiny homespun community of support has reached 1,200 Facebook fans? I am still pinching myself in disbelief! I never in my wildest dreams thought our story would reach so many - and Lord knows I couldn't have done it without YOU. Thank you for sharing your stories with me, for your emails of encouragement and for allowing me to share my heart with you. It just keeps getting better everyday, and I am so thankful that we can grow together.

As previously mentioned, this past weekend we celebrated Sutton's life by participating in the March of Dimes March for Babies!
I am so proud to share that Team His Middle Name raised $1,375.00 - more than double what we raised last year and a record for our team! Not only that, but Team His Middle Name was among the TOP 10 teams recognized for funds raised. I am humbled by the many family and friends that donated to such an important cause - each and every one of you have made an impact. Thank you for allowing us to be successful in raising money that will support community programs and research, as well as raising awareness that advances the mission of the March for Dimes. Below are a few photos of our day honoring our son's life and all those born too soon.

Picture
Now let the fun continue! Did you know there's a day just for us preemie parents? Well, believe me, there is and it's a wonderful opportunity to take some time to reflect and process all you have been through as the parent of a premature child. Graham's Foundation recognizes that only a preemie parent knows the strength and resiliency it takes to make it through the unforeseen challenges of the NICU, and they want to praise our commitment! Preemie parents have the same responsibilities that all other newborn parents have only with more appointments (specialists, follow ups, therapy, etc.), and often times caring for a child that has been sent home on medication, oxygen or a feeding tube. It's a lot to juggle while maintaining the responsibilities of home and work. That's why Parents of Preemies Day is so important: it validates our experience and honors it.

There are so many simple ways to get involved and observe this special day! First (and probably most important)
give yourself a "me party." What is a me party? It's taking time to indulge yourself. Whatever helps you relax and reflect - do it! Run a bath or marathon, it doesn't matter as long as you are treating yourself well. Secondly, you can spread the word about Parents of Preemies Day by simply posting pictures of you and your preemie on Facebook or twitter. This is a great way to reach others and possibly connect with someone in your inner circle who has also gone through a NICU journey of their own. You can also visit the Parents of Preemies Day Facebook page to share your pictures and story. You never know - your experience may resonate with another preemie parent and offer them just the hope they need to remain patient in their own journey.
Lastly, treat yourself to some swag! You can purchase t-shirts, buttons and magnets by visiting the Parents of Preemies online shop. I have a t-shirt (which is super soft and I absolutely love!) that I wear year round, and it serves as a little reminder of all we have been through as a family. It also is a great conversation starter! You wouldn't believe how many people stop me and ask me questions every time I wear my "Proud Parent of a Preemie" shirt. I'm literally wearing my experience on my sleeve, and it never fails to touch someone or spark a heart to heart. That's how healing begins; the more you share of yourself the more the wound begins to mend.

As a new month is among us, I want to offer you some words of renewal.
You are powerful, soulful, strong, rooted and divinely supported. You are loved, valuable and cherished. You are wise and generous. You are safe.
Be gentle with yourself and mindful of others around you. This Sunday, when you are celebrating Parents of Preemies Day, it's okay if the laundry doesn't get done or the grocery shopping has to wait one more day. This is your day to treat yourself and satisfy that sweet tooth! I hope you all have a pampered and blessed day.



0 Comments

    I’m a southern gal to the core who lives for my family, has a serious weakness for chocolate, a penchant for anything that can be monogrammed and loves to craft and sew. Thank you for your interest and welcome to His Middle Name!

    Picture

    Archives

    May 2015
    February 2015
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    May 2014
    April 2014
    March 2014
    February 2014
    December 2013
    November 2013
    October 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012
    April 2012
    March 2012
    February 2012
    January 2012
    December 2011
    November 2011
    October 2011
    September 2011
    August 2011
    July 2011
    June 2011
    May 2011
    April 2011

    RSS Feed

© 2011 - 2017 His Middle Name. All Rights Reserved. Northern Liberties, Philadelphia, PA.